I have been doing FM research for years and lately have noticed a major difference in the way websites about FM/CFS are offering treatment protocols. For years it seemed that everyone had the same message for us..."We really don't know how to treat you"! Now, there are infinite sites available offering FM/CFS treatment, most embracing the same basic outline of treatment which involves the basics of Mitochondrial Dysfunction. I have a friend in Ga. who travels a great distance from her home to Marietta just to see an FM specialist, whose treatment protocol revolves around this concept. She is like me, has serious and complicated FM. She has told me that this type of treatment hasn't helped her at all. She is still basically too ill to function, cannot work, is depressed and feels like she has the flu all the time. She still has to take narcotics to aleviate her pain despite the treatment for mitochondria dysfunction. I, on the other hand, am being treated by a Neurologist with western medicine methods and feel the same way...that I am barely getting by and am not getting any better. I am too sick to work, feel like I have the flu all of the time, depressed and am tired of having to jump through hoops to get the narcotics I need just to be able to tolerate the pain. I suggested mitochondrial dysfunction at my last appointment with him and he became hostile and defensive, accusing me of being in denial. So, the question is, what are we to do? Taking into consideration that each case is different and what works for one may not work for another, ya-da-ya-da....How is an FM/CFS sufferer supposed to find help in either medical universe? The fact is that they still don't know what to do with us and we don't really understand what our options are because the two protocols will not work together to find a solution. If the answer is somewhere in the middle and a combination of the two might actually help, then why is it so difficult to convince those who work with these two treatment protocols to work together? The world may never know.
As I mentioned, I am researching mitochondrial dysfunction and have added a breif explaination of it on the site, hoping to soon have enough info put together to add a whole section about it. It's just a matter of writing the content and getting the pages put together, so check back here or at the site for updates. I personally, do believe that the answer is somewhere in between the two major treatment protocols. Convincing my neurologist of that is another thing altogether, considering his reaction when I simply mentioned it. I probably won't have any luck getting his cooporation in melding the two and will have to see another dr. about doing it. Regardless, it will all be added to the site or here so that ya'll will know what happens.
Again, I ask you to support the site, share the url with friends who have FM or CFS and participate in the forum. I hope that everyone is blessed with a pain free day!
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